God’s Miracle

Hey Everyone,

A miracle has taken place! Gabrielle has been seizure free for 5 days and the doctors are amazed!

My parents visited us last weekend and they arrived early Saturday morning which was the day I last posted. Sunday, Gabrielle had a rough day consisting of about 12 seizures. That evening my Dad suggested we all gather around Gabrielle and pray for her, which we did. My dad began by praying,”Where two or three have gathered together in My name, I am there in their midst.”Matthew 18:20 He also said “Your word says that if we ask for things in the name of Jesus, that they would be granted to us. So that’s what we’re doing. In Jesus’ name, we’re asking you to heal Gabrielle.”

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God’s Plan

Hey Family and Friends,

Gabrielle was discharged home Friday around 6pm. She completed the Video EEG which showed activity coming from both sides. Dr. Gallentine said this could mean abnormal activity is deflecting from the right, through the brain stem, to the left side making it look like it is originating from the left when in fact it isn’t. It could also mean it really is originating from the left. Gabrielle will be readmitted Tuesday for further testing. She will have SPECT and PET scans completed to determine where the abnormal activity is coming from. She underwent an additional MRI Friday to further assess the right frontal lobe because it looked like there may have been a little abnormal tissue left over from the resection. It seems by the end of this week we should have a better idea of exactly where the seizures are stemming from and whether Gabrielle is a candidate for any further surgical intervention. I will keep you posted.

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Please Pray

Hey Everyone,

Gabrielle will be readmitted to Duke today for further Video EEG monitoring. It should take about 3 days to record sufficient seizure data. We are praying all of the activity continues to come from the right side.

We will keep you all posted and would greatly appreciate your continued prayer.

Thanks!
Kelly

Difficult Road

Hi Friends and Family,

I’m sorry I have not updated in awhile. It has been a rough week. I have been sick since Monday and I think today I have finally beaten this thing!

Gabrielle is doing about the same. She is having 6-12 seizures a day. She also began having these mini seizures which follow her typical seizures. The doctor said her seizures could be evolving which wouldn’t be surprising and they could be infantile spasms. Gabrielle has been sleeping a lot and I have to work very hard to get her to eat and drink. The one med she is on causes anorexia. Dr. Gallentine, her neurologist, is going to get back to me on Monday about having her admitted for further testing. He needs to check with Dr. Grant to see if he thinks Gabrielle’s skull has healed enough for the electrodes to be attached. I will keep you posted as we learn more.

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Praying the Seizures Stop

Hey All,

We met with Gabrielle’s surgeon and neurologist yesterday. We are increasing her medication to see if it helps in reducing the seizures. We are hoping this buys us some more time for the healing process to be completed and we are praying it stops the seizures. If she continues to have the same frequency of seizures she will need to be readmitted into the hospital for another video EEG. This would be done to determine if the abnormal electrical activity is all still coming from the right side. If it is, she would need to have a grid placed under her skull for further testing and if everything still pointed to the right side she would be a candidate for a functional hemispherectomy. This surgery disconnects the normal half of the brain from the abnormal side so that the normal side can continue to develop normally. It causes some left side paralysis and should be done early in development for the best outcome.

Thanks for the continued prayer and encouragement!
Love, Kelly

Choose Hope

Hi Everyone,

The last several days have been discouraging. Gabrielle has been having 10-20 seizures a day. It is difficult to accept this when her scalp still has a fresh line of sutures.:( Her seizures look almost identical to what she was experiencing before surgery. I have been giving her Klonopin on top of her regular meds to try to break up the clusters. She seems to either be sleeping, having seizures, or both. It is really sad to watch the effect the seizures are having on her. She has regressed in so many areas. We meet with her surgeon at Duke tomorrow. Please continue to pray for our little girl.

I want to share with all of you what I read in a book by John Ortberg moments after Gabrielle had her first post-op seizure.

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