Hey All,
We went to Duke for a follow-up appointment today. Gabrielle weighed 19.6 lb! This is an impressive gain after weighing 16lb for so many months. The doctors thought she looked great and felt her left sided weakness had improved.
They were a bit surprised to hear Gabrielle is off all of her meds. Dr. Gallentine said I’m trying to give him more gray hairs. We discussed the pros and cons of meds and I stated that I feel comfortable leaving her medication free because I don’t believe the meds are responsible for her improvement. I believe she was healed. He agreed the meds didn’t seem to help her much and that they can effect development. He said the norm is to keep them on the meds for 1 year following surgery but since she is doing so well and we are comfortable without them she can stay off of them. He said to continue physical therapy and we’ll see you back in 6 months.