Carolina Here We Come!!!!


Tomorrow is the big day! We will be discharged and should arrive home sometime on Friday. Gabrielle has made amazing progress over the last two weeks. She is walking while holding my one hand and can take steps between people or stable objects. She is able to move fairly well on her hands and knees now and she can independently get herself to a sitting position most of the time. The recovery of her left arm has been slower and she really does not move her left hand at all yet. The symmetry of Gabby’s face has improved and she is compensating well for the visual field cut which resulted from surgery. A CT scan of the head was completed and it showed no evidence of hyrdocephalus. Horray! The doctors say that normally if there is going to be a problem with CSF drainage it would have occurred by now so this is great news.

Overall, Gabrielle is a completely different child than she was 6 weeks ago. I think back to when we arrived in rehab and she couldn’t even maintain a sitting position or hold her head up straight and now she is cruising down the hallways like a little spit-fire trying to keep up with her fellow rehab buddies. I feel so much better about going home. Gabby still has a lot of work ahead of her and she begins outpatient PT first thing Monday morning. They are recommending she receive about 10 hours of therapy per week at this point which will make for a busy schedule. I am excited though to see the milestones Gabrielle can achieve with those nasty seizures behind her.

I want to thank all of our family and friends who have carried us through these last few months. We wouldn’t have been able to come to NY to get the very best care for our daughter without the help of so many of you. You have so unselfishly given to get us to this point. We pray that God will provide us with many opportunities to give as generously as all of you have given. We thank God for His mighty hand in all of this and for the amazing people He has placed in our life.

Thank you!
Kelly

Comments

  1. Yeeeeeeeeeeeeeeeeeeeeeeeeeeeehah!

  2. Wow wow WOW! Excellent! Go Home!!!!!!! Yippee for Gabrielle! You are going to be so psyched to get home!!!!!!

    Margaret

  3. Cindy & Mark Francis says:

    Hallelujah!!! We are so happy for all of you – to be physically together as a family and to be coming home! Can’t wait to see you all! Have a safe and fun return trip.
    The Francis Family

  4. Nancy O'Melia says:

    Praying you guys have a safe trip home and we can’t wait to see everyone again.

    Much love,
    Nancy

  5. Praise God for His mercies. They endure forever! Looking forward to see you all again sometime soon.

  6. Anne Wright says:

    That is such wonderful news!!!!!!! It has made my day!

    Love,
    Anne

  7. Court and Karen Weathers says:

    We are rejoicing with you in our Lord’s goodness! What a blessing for all of you to be together again, in the same house! What a day of fun and noise and laughter Saturday will be!

  8. The Ditto's says:

    God is good!! Looking forward to seeing you all!

    Love,
    The Ditto family

  9. Judy Binns says:

    It’ll be so good to see you guys! I’m bummed we’ll be at the beach this Sunday, but we’ll catch up soon!!!

  10. Colleen Eglintine says:

    We are so happy that you all get to be together again. We miss you already of course!
    Love from Boston,
    Jeff, Colleen, and Mia

  11. We are overjoyed here in Texas to hear such wonderful news!!!

    Cris and Kristi Hall

  12. Hey Kelly!
    I hope that this means that you have made it home safely and are doing well! Gabby looks absolutely WONDERFUL in the pictures and video! I have the same blue therapeutic bench sitting here as well as a rear support walker with hip supports waiting here for your word if you can use them at all! I would love to hear from you! Give me a call sometime at 607-3318! My prayers continue for you and your family. I am sure that you are enjoying meeting your daughter again as personality certainly changes when nasty seizures are no longer there! If you need anything I am here and willing to help where I can!

    Julia

  13. The pictures look great!! I hope that all are well!

    Margaret

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