Heading to NYU

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Gabrielle is still having seizures. We reached the maximum dosage of Trileptal and then started transitioning her onto Depakote this past Thursday. She has had about 50 seizures since we began adding the second medication. They are really beginning to affect her daily routine. She wakes up most days and immediately begins having seizures. The seizures and medications completely wipe her out and she has been taking 4 hour naps. While she is awake she has been less active than normal. Her left arm which is already hemiparetic has grown increasingly toned with the return of seizures. She is no longer able to flex and extend her arm.

Dr. Devinsky thought it would be best if we could head up to NYU this week rather than waiting for our Duke admission date next Wednesday. Duff will be leaving to take Gabrielle up to New York sometime in the next 24 hours. She will have a video EEG completed to determine where the seizures are stemming from. There are basically three possibilities: 1(They’re coming from the left side(good side) 2)They’re coming from the remaining tissue on the right side and a small connection was missed or 3)They’re coming from somewhere deeper in the brain. Please continue to pray for our sweet Gabby.

We will keep you posted.
Love,
Kelly

Comments

  1. We are praying!

  2. Nancy and Steve says:

    Kelly and Duff,

    We are so sorry to hear that Gabby’s seizures have returned. We are praying that you will find a complete resolution at NYU.

    Love,

    Nancy and Steve

  3. Shelley Conner says:

    Kelly, all my thougths and prayers are with Gabby, she is so sweet…I am praying for all of you!! I am without kids this week, if I can do anything in the evenings for you, please let me know!!

  4. Cindy, Mark, Anna & Jack says:

    We are still praying for you all and that the doctors will find the source of the seizures and be able to take care of it. Love you all.

  5. Margaret & Graham says:

    We’re thinking about you-

    Margaret and Graham

  6. Judy Binns says:

    We continue to pray for all of you while on this difficult journey.

  7. Bonnie Dougherty says:

    Kelly- We’re all thinking about you guys- let me know if there is anything that you need in NY- my parents live on Long Island and if Duff needs anything at all while he’s there, just let me know and I’ll put them on the job. – Bonnie

  8. Duff & Kelly, sorry you’re experiencing this very difficult trial. I’m sure every parent can empathize with you to at least a small degree. We serve a mighty God who is the same yesterday, today and forever, and who continues to heal today. He has healed me miraculously, and I pray that He will just say the word that Gabby would be healed perfectly. Be encouraged in the Lord for He has said He will never leave you nor forsake you.

    Brian

  9. The Embler says:

    We are praying for y’all!! May the peace of God that surpasses all understanding guard your hearts and minds in Christ Jesus our Lord! Lord Jesus, touch Gabby’s body and give Duff, Kelly and the rest of their precious family strength and endurance to persevere in this trial that they may receive their crown!! (Phil 4 & James 1) We love you! The Emblers

  10. Wanda Jones says:

    Gabby continues to be in our prayers! PMA!

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