Let me begin by mentioning how thankful and blessed I feel to be broaching this topic here on Gabby’s blog. If you know Gabrielle’s story, then you know how we painfully surrendered the expectation of a normal future for our little girl many times over.

I surrendered the expectation that my child would crawl, and walk, and talk. I surrendered the expectation that my child would feed herself, be potty trained, and climb in and out of bed.

I remember telling a few dear friends of mine (as I detailed the heartbreak, the miracles, the struggles, and the triumphs on this blog) how it had really become a dream of mine that Gabrielle would one day be able to *read* this blog and understand the amazing ways God had worked in her life.

As I shared this hope, I recall my eyes brimming with tears. The tears threatened to spill forth because I knew it would represent another miracle.

Another miracle I was frightened to hope or wish for. A milestone that could mean future independence. A milestone that would open so many doors to a bright and fulfilling future.

My Gabby, arriving at a place where she could read and understand written English, a miracle for sure.

So here I stand at the crossroads, about to embark on this journey, wondering if this will be part of God’s plan for my sweet princess, or not.

In trying to prepare and research the best approach, I accessed something that was filed away deep in the recesses of my mind.

I recalled reading somewhere, surely on another mom’s blog, how children with brain injury often learn best using a sight word approach in the first five years of development.

Upon googling, I immediately came across two books by Glen Doman: How To Teach Your Baby To Read and What To Do About Your Brain-Injured Child.

I was so anxious to read the books and get started, that I forgot to order kindle editions. Two days later my paperback books arrived, which I shall forever cherish as collector’s items, or more likely pass onto another mom. ;)

I began reading How To Teach Your Baby To Read first, and found it to be very informative, logical, and exciting.

I taught my four oldest children to read using the phonics approach, and therefore I’m pretty familiar with the tedious struggles that it can introduce. It takes a lot of juggling and perseverance for the typical five year old to master all the different sounds and rules, in order to become a successful reader.

This book is inspirational because it argues that a child can grasp the written word, just as easily as the spoken word, if it’s introduced correctly and at the appropriate time (ideally in the first five years).

Heck, I thought, I can teach my three youngest to read simultaneously. And I was off….

Watch out world! I ordered a giant box of bold-tip red markers and a life-time supply of poster board, which arrived today. I’m ready to get started and will surely let you know how this goes.:)

As far as Glenn Doman’s other book goes, What To Do About Your Brain Injured Child, I’m half-way through and it is wow. Just wow. Now mind you, I studied psychobiology/neuroscience for my college major, so I’ve always found this kind of stuff interesting. But people, this book is completely fascinating.

If you have a brain-injured child, it’s a must read.

Are you treating the symptom or the problem itself? That’s all I have to say.

Right now I’m off to make flashcards. Lots and lots of large flashcards, with red bold print.:)

Goodnight.

* Gabby turned 5 on October 13, 2011, but I’m just now getting around to updating. ;)

Gabby was super excited to turn 5 this year. When asked what she wanted for her birthday…she responded,”I want presents, birthday cake, and ice cream!”

One week before her party she spotted a large brown shipping box in my closet.

She inquired,”What’s in that box, Mommy?”

I shared that the box contained presents, and her eyes grew large as saucers and a huge smile spread across her face.

“Presents for my birthday, Mommy?”

I assured her that she was correct.

We continued on with our morning routine, getting dressed and groomed for school.

We headed downstairs for breakfast.

Twenty minutes later she came up to me and said,”I love the presents for my birthday!”

She was just soooo excited!

We kept the party small. (Just our family, plus Uncle Russ and Aunt Nancy.)

We didn’t want Gabby to get lost in the busyness of a larger gathering.

We had all of Gabby’s favorites.

Pigs in blankets.

Pizza.

Candy corn.

Chips.

Ice cream cake.

The cake balls were something new, and she refused to try them.

And lots of presents!

She needed help with the ribbon but managed to do a lot of the unwrapping independently this year.

Strawberry Shortcake dolls.


A Barbie car.


Snap ‘n style dolls.

Books.

“Ice cream card” (McDonalds Gift Card)

She loved it all!

Then we lit the five pink candles. And with a little rotational help from Aunt Nancy, Gabby managed to blow them all out!

I’m pretty sure my little princess did not make any wishes, but her mommy did.:)

Wishes for many more years like this one…

Full of growth, milestones, accomplishments…

for my beautiful little miracle.

Being the mother of a special needs child can be challenging.

It can be exhausting.

It has many, many amazing rewards while at the same time it can be so very difficult.

Your child needs you in every way a typical child does in terms of meeting their basic needs, structure, discipline, and sharing time together, but there is also so much more.

Medical appointments, medication, developmental delays, therapy, orthotics, stretching, exercises, IEPs, and research, can consume a great deal of your time and energy.

The additional responsibility of being you child’s advocate, consistently fighting for what your child needs to excel, can be daunting.

Mom guilt abounds in an entirely new way.

Did I cause this?

I didn’t do her exercises today.

We forgot to stretch lefty.

I didn’t let her struggle to dress herself.

I enabled her at the dinner table.

She’s running around barefoot instead of wearing her braces.

We haven’t practiced handwriting.

The constant struggle of discerning when to help and when to stand back and let her struggle wears me down.

And then you find that person who helps shoulder the load.

A person who listens to all your worries and concerns.

A person who helps you navigate this life with a special needs child.

This week we took a moment to thank that very special person for everything she does to help our Gabby.

Below is the letter I wrote (from Gabrielle’s perspective) to our very favorite Physical Therapist (Betsy Murphy) at Abilitations Children’sTherapy. http://www.actwc.com/

Dear Betsy,

I love you. I like your hugs and kisses. I love how you always have a smile on your face. I have lots of fun playing games with you every week. I know that sometimes you make me work very hard so I can get stronger and do things for myself. You are good at figuring out when I’m being silly to avoid doing my exercises. I sometimes hear you trying not to laugh at my antics. You do a great job of pushing me. I know you really want me to grow up to be the very best I can be.

My mommy loves you too. She says you are the best therapist around. She says you don’t help children like me just for the money. Mommy says you really care. Mommy thinks being the parent of a special needs child can be challenging. But she told me that you make her job soooo much easier. She thinks you’re a wonderful advocate for me. You even know how to wipe away “mom guilt”.

Mommy and I want to thank you for everything you’ve done to help me become a confident and independent little girl who runs, jumps, climbs, and soars to new places every year. You are amazing!

Cutely Yours,
Gabby O’Melia

Today I am raising an Ebenezer.

I am placing a stone, as Samuel did, to mark the place where the battle was won.

A stone to mark the place where victory was achieved with the Lord’s help.

I’m placing a stone to remind me of God’s faithfulness.

A stone to remember those darkest days of sorrow.

A stone to acknowledge the power of prayer.

I am placing a stone to express gratitude. A profound thankfulness for a fresh beginning.

I am placing a stone because we humans are forgetful. Time passes and the amazing intricacies of what God has done in our lives begin to fade. The details blur and grow fuzzy.

We begin to forget that we serve the same amazing God of the bible. A God of miracles. A God of love and mercy. A God who will never leave us nor forsake us.

I am placing a stone to mark 2 years of seizure freedom for our beautiful Gabrielle.

Then Samuel took a stone and set it between Mizpah and Shen, and named it Ebenezer, saying, “Thus far the LORD has helped us.” —1 Samuel 7:12.

I could not possibly express this challenge any better than Charles Spurgeon did below.

“It is certainly a very delightful thing to mark the hand of God in the lives of ancient saints. How profitable an occupation to observe God’s goodness in delivering David out of the jaw of the lion and the paw of the bear; his mercy in passing by the transgression, iniquity, and sin of Manasseh; his faithfulness in keeping the covenant made with Abraham; or his interposition on the behalf of the dying Hezekiah. But, beloved, would it not be even more interesting and profitable for us to remark the hand of God in our own lives?” -C.H.Spurgeon

What has the Lord done in your life???

I can’t believe how long it’s been!! I completely disappeared for months! It all started with frequent hunger. Then nausea, extreme fatigue, vomiting……

And you guessed it- Preggers!

I don’t function well when I’m pregnant. I feel really sick for the first few months. Stomach flu sick. Then the fatigue and baby brain settle in, rendering me completely useless.;)

All things optional are thrown out the window, including blogging of any kind.

But, I’m back! And all the difficult days were entirely worth it! Gabby became a big sister in March, to a new baby brother named…

Logan Robert

He is the sweetest little guy and we all just love him to pieces!! Such a precious gift!!

Gabby has been very good with baby Logan for the most part. She does have her moments…but don’t we all?? :)

Where do I even begin to catch you up on everything going on with Gabby?!

Let’s start at the very beginning:

Two.

Pink.

Lines.

A positive pregnancy test and you add another face to the family portrait. You mentally install another carseat in the maxed out mini van. You set another place at the table. You order another stocking to hang from the mantle.

From the moment you discover that a new life is being knit together, expectations abound.

You hear the galloping heart beat and see four tiny limbs fluttering about. Your child is running on the playground; chasing after a soccer ball.

You learn the baby is a girl. She’s dancing, twirling, tossing her hair through the air. She’s pushing baby dolls that quickly turn into grandchildren, as your vision speeds through all the wonderful years ahead.

Your daughter is born with ten tiny toes, chubby cheeks, and bright blue eyes. She’s taller and thinner now…all in white, carrying a beautiful bouquet.

Your sweet girl is cooing and smiling at you. What will be her first word? When will she crawl?

Your baby is peacefully nursing and suddenly,

without warning,

every expectation is erased.

Seizures. Catastrophic Epilepsy. Medically Refractory. Cortical Dysplasia. Brain Surgery. Mental Retardation. Dependence. Mentally Delayed. Physically Challenged.

The labels are numerous.

You’re mourning the loss of the child you had imagined. The child you had expected.

You bargain, you question, you beg…

And God responds:

Trust Me. All things work together for good to those who love Me, to those who are called according to My purpose.

Lord, I believe; help my unbelief.

You surrender it all. Every hope, Every dream, Every assumption. The slate is wiped clean.

But Lord, How can this be good?

Be still and know that I am God.

Lay down your pen child. I am the Author of this story

And now, four years later, you begin to see the beauty of a slate that has been wiped completely clean.

You begin to see the beauty of surrender.

Because as promised, a good and wondrous thing happens…

Gifts.

Everything becomes a gift.

And here are the amazing and wonderful gifts God has chosen to fill our precious Gabrielle’s slate with:

- Gabby is the sweetest, most affectionate little girl.

- She’s so quick to smile and laugh.

- She LOVES books.

- She’ll find a bookshelf and sit in front of it for hours flipping through pages.

- Gabby loves: macaroni and cheese, cereal, pizza, yogurt, cheese and crackers, apples, chocolate milk, sweet tea, chicken nuggets, grilled cheese, and SUGAR! Anything else is risky.

- Gabby has 4 “best friends” at school.

- Gabby knows her colors, numbers 1-10, alphabet, and shapes.

- Gabby enjoys watching Dora, Caillou, Diego, and Leapfrog.

- She loves playing dollhouse, kitchen, and dolls with her sister Makinley.

- Gabby holds a pencil correctly and is able to make horizontal and vertical lines, circles, crosses, and is working on triangles.

- She’s learning to use scissors with righty and stabilize paper with lefty.

- She’s learning to dress and undress herself but still requires moderate assistance.

- Gabby independently uses the stairs.

- She climbs in and out of a regular twin bed.

- She loves to have her “computer time”, during which she lives on PBS and Starfall.

- Gabby feeds herself and can drink from an open cup.

- Gabby can lower pants and underwear to jump on the potty independently. Pulling them up is more difficult but she’s getting there.

- Gabby speaks in sentences but effort is required to put her thoughts into words. She especially struggles with more abstract concepts.

- Gabby has a stubborn streak. I usually appreciate this spunkiness but it can wear on me. ;)

- Gabby has been seizure-free since last surgery.(9/2009)

- Gabby thinks she owns my iPhone and is quite good at finding her favorite apps.

- Gabby gives the BEST one-armed hug around!

- She says “I Love You, sooo much Mommy” daily.

“Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.” James 1:17

Gabrielle had a wonderful 4th birthday!

She ate chips without dip and drank sweet tea.


She opened presents….



She was positively glowing.

IMG_5369

Even when little Kin-Kin mutilated her castle cake she kept on smiling.


So thrilled to have her family sing “Happy Birthday”.

And tried her very hardest to blow out the candles.

What a blessing to celebrate Gabby’s 4th birthday!

Here is a quick video clip of Gabby’s first impression of the balloon bouquet she received when the music began playing:

Gabrielle turns 4 years old one week from today.

I can’t believe it!

She has been through so much.
We have been through so much.

So many trials. So many miracles.

Obstacles. Accomplishments.

A little life woven together such a short time ago that has touched so many lives.

And none of it will be unredeemed. Imagine that!

To celebrate all the amazing things God has done in and through her life so far, I created the following video:

Here are the lyrics to Selah’s song, Unredeemed :

The cruelest world
The coldest heart
The deepest wound
The endless dark
The lonely ache
The burning tears
The bitter nights
The wasted years

Life breaks and falls apart
But we know these are
Places where grace is soon to be so amazing
It may be unfulfilled
It may be unrestored
But when anything that’s shattered is laid before the Lord
Just watch and see
It will not be unredeemed

For every choice that led to shame
And all the love that never came
For every vow that someone broke
And every lie that gave up hope
We live in the shadow of the fall
But the cross says these are all
Places where grace is soon to be so amazing
It may be unfulfilled
It may be unrestored
But when anything that’s shattered is laid before the Lord
Just watch and see
It will not be unredeemed

Places where grace is soon to be so amazing
It may be unfulfilled
It may be unrestored
But you never know the miracle the Father has in store
Just watch and see
It will not be
Just watch and see
It will not be unredeemed

Summer of 2007: Gabby spent much time visiting doctors, completing testing, and undergoing a right frontal lobectomy at Duke.

Summer of 2008: Gabby spent at NYU undergoing a 3 stage surgery which resulted in functional hemispherectomy.

Summer of 2009: Gabby’s seizures returned bringing us back to NYU for more testing and the completion of an anatomical hemispherectomy.

Summer of 2010: Gabby had fun!!!!

She swam. She played in sprinklers,
spraygrounds, and sandboxes.

She went to the fireworks. She ran barefoot.

She went down a water slide. She enjoyed her cousins’ company.

She jumped on the trampoline. She licked ice cream until it ran down her shirt. She picked blueberries.

She ate homemade pizza in her bathing suit. She ran around playgrounds. She danced to her favorite music.

She smiled. She laughed. She lived, free of wires, bandages, machines, doctors, and hospitals.

Thank you Lord, for this summer.


When Gabrielle had her first evaluation for North Carolina’s Exceptional Preschool Program back in January and her IEP was being developed I stated that my main goal for the year was to get my sweet Gabby potty trained. Over the last several months I periodically stuck a resistant 3 year old on the potty but we never had any success. As summer approached and with it fewer responsibilities and commitments I vowed that potty training would become my priority. I would start on this endeavor the week after constraint camp ended.

So as I began meeting other families at camp, many wonderful families who also had a child with hemiplegia, I inquired about approaches and success in the potty training arena. I was so encouraged by their stories. They all had positive outcomes. They all seemingly began with scheduled potty times and it gradually became a habit. I was ready to get started!

I armed myself with a few good children’s potty books and prepared myself to do battle. The first few days I spent an inordinate amount of time in the bathroom. (So glad we recently repainted the pepto bismol pink bathroom to a more soothing shade of blue.) We would be at that crucial juncture when you know the child’s bladder is ready to explode and you don’t want to risk taking them off the toilet for fear of missing the long awaited opportunity. My husband returned home from work one day and my eldest child announced, “Mom has been in the bathroom for like the last 3 hours!” Gabby would be trying to remove herself from the throne as her anxiety mounted with the sensation of a full bladder. I would be restraining her, distracting her with books and songs, and then finally she would relax her muscles. Voila! She would pee on the potty.

It only took a couple of days for Gabby to learn to control the muscles so that now when I sit her down she can go in under a minute. Gabby has not had an accident in a couple of weeks. She is even staying dry during nap time and through the night.

We went to Walmart, as promised, to purchase Elmo and Abby underwear which Gabby has been sporting ever since. Initially Gabby refused to wear clothing over the undies because she wanted to flaunt them, proudly parading about the house. Now she is once again open to wearing clothing and she tells me “Mommy, potty.”, when she needs to go. Then we bust into song together:

I’m off to the potty.
No more diapers for me!


Music notes!

I feel great,
I am proud of ….ME!











This week Gabrielle is attending an 8 day constraint induced therapy camp organized by Holly Holland, an occupational therapist at UNC, Chapel Hill. Here is a short article which describes her motivation and vision for the camp.

Today is Gabby’s fourth day and I am so impressed with the effort being put forth to help kids with hemiplegia (paralysis of one side of the body). There are 33 children here this week who struggle with hemiplegia. The hemiplegia in most cases resulted from a stroke although a few are the result of brain malformations, surgery, or trauma. Every child was casted ahead of time and a bivalve cast was made for the unaffected arm. This cast is worn each day on the “good” arm to necessitate use of the affected arm during countless camp activities. Each child is matched with a “helper” who in most cases is an OT/PT student. The campers are broken down into age appropriate groups and then each group rotates in and out of different rooms where activites are organized to facilitate use of the hemiplegic arm. Several of the camp days incorporate a specific theme like “space day” or “luau day” and then all of the activites and snacks revolve around this theme. Many parents and therapists are here volunteering throughout the day helping with campers or prepping crafts, snacks, and activities.

Camp runs for 6 hours each day and the first day I was worried it would be too much for my little Gabby who still enjoys an afternoon nap. One hour before quitting time I was becoming a wreck wondering how she was surviving. I was afraid to check-in on her knowing that if she saw my face that would be the end! Just when I was most panicked a kind grandfather of another camper came by and said,”I just met Gabby and she is delightful!” “You mean she’s doing okay?!” I responded. “Oh, she’s doing great!”, he assured me. Gabby has continued to do well thus far. She was a bit hesistant to leave my side this morning because I think she’s wiped but once she saw her “buddy” Lindsey she came to life. Lindsey has been so wonderful with Ms. Gabby. She is so full of life, beautiful smile, energetic, and bubbly. The perfect match for my sweet girl.

Each day at 3:00pm the little campers ages 3-10 come marching down the hall with their helpers, beaming with pride. My eyes well with tears as I watch each of the proud campers find their way to Mom or Dad presenting them with crafts and doodads from the day. Each of these children and their parents chosen to shoulder special challenges and fighting their way to succeed.

Here is a picture of Gabby with her super duper student therapist Lindsey:


Constraint Therapy video from UAB

Gabby has been doing wonderfully! She is stubborn, determined, obstinate, opinionated, and strong-willed! A very welcome change from her once lethargic existence. She continues to love school and is better able to share some of her experiences when I pick her up. She especially likes to report any children that happened to receive “time outs” that day, herself included.

She continues to love working with Betsy her PT at Raleigh Neurology. She looks forward to “playtime” with Betsy. Gabby was recently fitted for a new pair of SMO’s (braces). They seem to give her much better support preventing the left ankle from rolling inward. Initially I encountered some serious resistance every time I tried to put the new braces and shoes on Gabby’s feet. She would literally sit there crying for 20 minutes and refuse to stand. It is difficult to know whether the braces hurt in this situation or she is just opposed to trying out something new on her feet. Turns out it was mostly the latter. Once Gabby realized these braces were sticking around she accepted the change. She wore them all day at the zoo last week and walked around for hours. She did have a slight rub mark on her left leg but nothing too serious.

Gabby was recently chosen to participate in a restraint camp for children with hemiplegia at UNC Chapel Hill. It begins June 12th and runs for 7 days. Her right arm will be casted for 6 hours a day and she will work one on one with a therapist to see how much function she can regain in her affected left arm. We are mostly hoping that Gabby will one day be able to use her weak arm as an assist to help her right arm do many of the two handed tasks required in a two handed world. I am very excited to see how this goes!

Developmentally, Gabby continues to make progress. She is able to name and identify the letters of the alphabet. She knows her colors. She is counting up to about 15 but is not always able to accurately count a group of objects. Gabby’s speech is definitely exploding, though I still struggle to understand her at times especially out of context. One of her favorite sentences right now is, “I love you soooo much, Mommy!” Any mom, of a special needs child especially, knows what an amazing gift this is! Potty training is still slow going. She has gone on the potty multiple times but I’m always the one taking the initiative and insisting that she try to go.

We recently went to the zoo and Gabby enjoyed herself immensely! She walked around the huge park so independently and self-confidently. She squealed with excitement when she spotted an animal she recognized and she studied them intently. She is still talking about all of the animals she saw and reminds me daily that the “lions sleeping, Mama”.

We continue to blissfully accept each seizure-free day we are given knowing every one is a gift from our heavenly Father. To walk without the burden of daily seizures resting heavily upon our shoulders is something I didn’t expect to know again. I hoped to be released from the shackles and to feel the weight once again lifted yet I didn’t know if we would be given the opportunity to feel this free for a third time. The joy I experience when my mind begins to wander, to dream, to hope for something beyond seizures is indescribable. Lord God, Thank you! Thank you for this precious time, these care free days, when we once again feel like dancing. And yet I know many who still carry this awful burden down a path with no end in sight and I pray Lord that you would carry them and deliver them from the shackles, that they may also know joy again. Joy that transcends all suffering and reaches to the very core of their being so that they too may dance again.

Have you ever come up with plans for the family that sound really good on paper and then somehow in the implementation phase something goes drastically wrong, expectations are crushed, and the fun outing turns into something completely different? Every time we return to NYC for medical reasons we come up with a new plan of attack to avert disaster. A new approach to beat the city that always seems to beat us. We develop a plan in which a family of eight can visit Manhattan in an economical, timely way, and accomplish the objectives of meeting with several specialists while still smiling and having fun. Perhaps our goals are unrealistic, too ambitious. Nevertheless, each time we remain optimistic as we make the arrangements for our trip into the Big Apple.

This past week we once again devised the perfect plan. The plan that would avoid multiple parking tickets. The plan that would circumvent astronomical parking fees for large 12 passenger vans. The plan that would assure no late night rides alone through the Bronx. We will take the train in from Connecticut! The kids will have a blast and it will be so relaxing. We won’t need to worry about driving and parking in the city. We’ll pop in and out of Dr. Devinsky’s office and then we’ll have the rest of the day to sight see, explore, and have fun!

While nothing went terribly wrong it just wasn’t the relaxed enjoyable trip we had envisioned. “Fun” is not the first word that comes to mind when I reflect upon the day trip. Frazzled, hectic, exhausting, are all words that surface ahead of “relaxing” in my mind. We arose between 4:30-5:30 am, ran around like lunatics for hours, and arrived in Manhattan at 1:28pm, exactly 2 minutes before our scheduled appointment time with Dr. Devinsky. We crowded into an 8×10 exam room and dialogued with our favorite neurologist about shivering, anticonvulsants, seizures, and brain waves. Dr. Devinsky felt the 72 hour ambulatory EEG completed in January showed no evidence of seizures or any erratic spiking. This news alone was well worth the morning’s journey. We decided next to continue on a conservative path medically considering Gabby’s history of returning seizures. We will slowly raise her Trileptal dosage as she grows over the next 6 months to maintain her current blood level rather than allowing her to “outgrow” her current dosage. We all agreed we don’t want to rock the boat just yet! Better to ride the rest of the year out with consistent medication levels in the blood.

We left NYU ready to celebrate the good news, relax, and enjoy some ethnic food. We chose an Asian sushi place and settled in for a special lunch. We realized when the food began arriving that Makinley had literally been immobilized for 6 hours straight. She had gone from car seat to train seat to stroller to restaurant bench. It was then that I stopped casually chatting, bent my head to my chopsticks, and began to pack away some serious sushi before the ticking bomb sitting beside me decided to explode.

We escaped the quaint establishment just as our youngest became possessed. She flung her head back and opened her mouth to scream as we crossed the threshold back onto the busy streets of New York. We headed for Fifth Avenue hoping a brisk walk would settle our psychotic baby into a deep slumber. It worked and the next few hours we spent enjoying window shopping, street performers, and unidentified celebrities. The kids expressed an interest in getting ice cream and we began hunting for a good spot. These children deserved some sweet creamy goodness after the adventures of the morning. They had been so well behaved and patient. We stopped for “dippy” (as my husband affectionately calls it) and after the last remnants had been licked clean from every spoon we released sweet Makinley from her stroller for a little exercise. Big mistake! She was everywhere all at once and the very sight of her stroller was enough to contort her face and send her little legs running in the opposite direction. It was then that the dark clouds rolled in and our plans for Central Park were squashed. We stuck “KinKin” in the stroller and fled toward Grand Central Station through the steady rain to catch a rush hour train with a few seats left 4 minutes before departure time. Now we just had to survive the 2 hour train ride, 20 minute walk to the remote parking lot, and the 45 minute drive back to my parents.

We did survive and though we came home exhausted that night it was a completely content and happy exhaustion. The exhaustion you experience when you know you’ve given life your best. When you tuck your children in without regret and then you happily crawl into bed bone tired thanking God that you’ve been given one more day to be together.

I posted the next installment of A Scandalous Story of Love on my blog. This is the last time I will update through Gabrielle Faith so if you have any interest in reading the rest of the story you can subscribe by following the link above to my homepage and finding the subscribe header in the right-hand column. I want to maintain the focus of this blog and consequently will only post Gabby related updates and information here in the future.

Over eight years ago Duff and I moved into our second house in a little neighborhood in Apex. We had two children at the time. Madeline was two and Gavin was one month old. The family that moved in across the street from us, also had two little ones. Their oldest was Connor and their baby Cameron was about a month older than Gavin. It wasn’t long before Connor’s contagious southern accent began rubbing off on Maddie as they played together and she began turning one syllable words into two. I specifically remember the conversation between these two youngsters one particular day. Maddie pointed off into the woods and began to pretend there were “wolfies” lurking in the distance. Connor was obviously not open to this particular scenario and he replied, “Now is not the time for wolfies.” I can also recall the months that followed when LeAnn and I would meet out on the sidewalk to discuss our needy infants and our struggle to fit a shower in much less anything else. It wasn’t long before Cameron and Gavin began toddling up and down the driveways together as we stood nearby catching some adult conversation.

Duff and I only lived in that home for one and a half years. The day arrived very quickly when we packed our things in two trucks, hitched our cars up on tow bars, and headed off to Wisconsin. We fell out of touch as the years passed, even after moving back to North Carolina, until one Sunday afternoon when I received the most surprising comment on Gabrielle’s blog. It was a comment from LeAnn and Ernest. They had found our blog while searching for information about Dr. Grant, a neurosurgeon at Duke. Their son Cameron was also a patient of Dr. Grant. We learned he had recently had a brain tumor removed. He was diagnosed with Medulloblastoma and would be receiving radiation and chemotherapy over the coming months. Cameron was going through his chemotherapy at the same time we were up at NYU having Gabrielle’s three-stage surgery. LeAnn was such an encouragement during that time. She lifted me up on countless occasions with her thoughtful comments, timely bible verses, and inspirational faith. All while her son was battling cancer.

Cameron completed his entire treatment plan and in August 2009 his one year post-chemo scan was clean. Cameron’s scan in December 2009 was also all clear.

Today we received news that Cam’s latest MRI, from this past Friday, showed his cancer has returned and has moved into pretty much the entire length of his spinal cord.

I would just like to lift this family up in prayer.

Lord God,
You are an amazing perfect God. A God of miracles. A God who promises to never leave us nor forsake us.
Lord, I ask that you walk beside this family through this valley and that you cast out all fear. I ask that you give them the peace that surpasses all understanding. I ask that you carry Cameron in the very palm of your hand and protect him from any pain and suffering.
Lord God, I pray in the name of your son Jesus, for complete healing of Cameron’s cancer knowing You are fully capable of this miracle.
Father God please surround this family with Christ’s love. Please reveal to us ways in which we can specifically be helping the Jackson family and showing them our love and support.
Lord may You be glorified through all of this.
In Jesus’ holy name
Amen

Please join us in praying for Cam and his family.

http://camjacksonupdate.blogspot.com/

Below are two of my favorite bible quotes that LeAnn reminded me of during Gabrielle’s surgeries:

“Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go.” Joshua 1:9

The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.” Deuteronomy 31:8

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